Engaging Stakeholders in Co-Developing the Michigan Stroke Transitions Trial (MISTT) Website Intervention

Preprint Publication Date:
April 23, 2025
Publication Status:
Awaiting Publication
Manuscript PDF File:

**Forthcoming in Progress in Community Health Partnerships (PCHP) 19.3. All rights reserved.**

ABSTRACT

Background: Complex physical and psychosocial transitional care (TC) challenges occur post-stroke. While technology-based TC interventions promise to increase self-management, user-centered design (UCD) and usability evidence is limited.
Objective: Co-develop online post-stroke patient-centered materials.
Methods: Using community-engaged Rapid Participatory Appraisal (RPA) methods, survivors, caregivers, and healthcare professionals participated in focus groups and usability evaluations to inform the design and usability of a co-developed website addressing post-stroke patient-caregiver TC needs.
Results: A staged iterative website development process evolved: original concept to wireframe prototype, beta website, and final website. Community-engagement informed final content, design, and functionality based on TC experiences. Universal website design guidelines were tailored to stroke survivor-caregiver needs and preferences.
Lessons Learned: Post-stroke TC experiences are diverse; more voices matter. Community-engaged RPA methods align with UCD and usability principles but require dedicated resources and funding for sustainable partnerships.
Conclusions: Community-engaged UCD is critical to creating patient-centered technology-based post-stroke TC interventions.