Self-management | Progress in Community Health Partnerships: Research, Education, and Action

Using a Community-Engaged Research Approach to Prioritize Self-Management Needs of Adults with Sickle Cell Disease

Author(s):

Maryellen Potts

Kristin Haglund

Elizabeth DeVries

Dora Clayton-Jones

Preprint Publication Date:

May 30, 2025

Keywords:

Sickle cell disease

Self-management

Community-based Participatory Research (CBPR)

health disparities

**Forthcoming in Progress in Community Health Partnerships (PCHP). All rights reserved.**

ABSTRACT

Read more about Using a Community-Engaged Research Approach to Prioritize Self-Management Needs of Adults with Sickle Cell Disease

Engaging Stakeholders in Co-Developing the Michigan Stroke Transitions Trial (MISTT) Website Intervention

Author(s):

Michele C. Fritz

Sarah J. Swierenga

Paul P. Freddolino

Constantinos K. Coursaris

Amanda T. Woodward

Mathew J. Reeves

Preprint Publication Date:

April 23, 2025

Keywords:

Transitional care

Community Engaged Research

Web-based intervention

User-centered design

Usability/web accessibility

Self-management

**Forthcoming in Progress in Community Health Partnerships (PCHP) 19.3.

Read more about Engaging Stakeholders in Co-Developing the Michigan Stroke Transitions Trial (MISTT) Website Intervention