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Progress in Community Health Partnerships:
Research, Education, and Action

Sickle cell disease

Using a Community-Engaged Research Approach to Prioritize Self-Management Needs of Adults with Sickle Cell Disease

Author(s):
Nadine Matthie
Maryellen Potts
Kristin Haglund
Elodie Ontala
Lee Za Ong
Weneaka Jones
Elizabeth DeVries
Dora Clayton-Jones
Preprint Publication Date:
May 30, 2025
Keywords:
Sickle cell disease
Adults
Self-management
Community-based Participatory Research (CBPR)
health disparities

**Forthcoming in Progress in Community Health Partnerships (PCHP). All rights reserved.**

ABSTRACT

  • Read more about Using a Community-Engaged Research Approach to Prioritize Self-Management Needs of Adults with Sickle Cell Disease

Improving the Lives of People with Sickle Cell Disease: Community Organizations and Epidemiologists Working Together

Author(s):
Amanda J. Young
Amanda Maresh
Shammara Pope
Rae Blylark
L'Oreal Stephens
Rebecca Aderjou
Emily Meier
Gary Gibson
Amanda Okolo
Shamaree Cromartie
Niani Coker
Susan Paulukonis
Jennifer Fields
Mandip Kaur
Jay Desai
Preprint Publication Date:
January 2, 2024
Keywords:
Sickle cell disease
communication
Community Based Participatory Research
Centers for Disease Control and Prevention
Community based organizations
Collaboration
Ethics
Health care quality, access, and evaluation

**Published in Progress in Community Health Partnerships (PCHP) 18.3. All rights reserved.**

ABSTRACT

  • Read more about Improving the Lives of People with Sickle Cell Disease: Community Organizations and Epidemiologists Working Together
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