Sickle cell disease | Progress in Community Health Partnerships: Research, Education, and Action

Using a Community-Engaged Research Approach to Prioritize Self-Management Needs of Adults with Sickle Cell Disease

Author(s):

Maryellen Potts

Kristin Haglund

Elizabeth DeVries

Dora Clayton-Jones

Preprint Publication Date:

May 30, 2025

Keywords:

Sickle cell disease

Self-management

Community-based Participatory Research (CBPR)

health disparities

**Forthcoming in Progress in Community Health Partnerships (PCHP) 19.4. All rights reserved.**

ABSTRACT

Read more about Using a Community-Engaged Research Approach to Prioritize Self-Management Needs of Adults with Sickle Cell Disease

Improving the Lives of People with Sickle Cell Disease: Community Organizations and Epidemiologists Working Together

Author(s):

Amanda J. Young

L'Oreal Stephens

Rebecca Aderjou

Shamaree Cromartie

Susan Paulukonis

Jennifer Fields

Preprint Publication Date:

January 2, 2024

Keywords:

Sickle cell disease

Community Based Participatory Research

Centers for Disease Control and Prevention

Community based organizations

Health care quality, access, and evaluation

**Published in Progress in Community Health Partnerships (PCHP) 18.3. All rights reserved.**

ABSTRACT

Read more about Improving the Lives of People with Sickle Cell Disease: Community Organizations and Epidemiologists Working Together