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Progress in Community Health Partnerships:
Research, Education, and Action

Nadine Matthie

Using a Community-Engaged Research Approach to Prioritize Self-Management Needs of Adults with Sickle Cell Disease

Author(s):
Nadine Matthie
Maryellen Potts
Kristin Haglund
Elodie Ontala
Lee Za Ong
Weneaka Jones
Elizabeth DeVries
Dora Clayton-Jones
Preprint Publication Date:
May 30, 2025
Keywords:
Sickle cell disease
Adults
Self-management
Community-based Participatory Research (CBPR)
health disparities

**Forthcoming in Progress in Community Health Partnerships (PCHP). All rights reserved.**

ABSTRACT

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